"Hemophiliacs are like vampires!"

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    F rebel8 posted Tue, 16 May 2006 17:03:00 GMT(5/16/2006)

    Post 3701 of 10070
    Joined 1/13/2005

    As I have talked about before, I have a serious bleeding disorder, not hemophilia though. Back in the dark ages of the '70s, the medical term used was "pseudo-hemophilia".

    Because I did not get appropriate medical care (thanks to the WTS), I spent many hours during meetings sitting in the smelly ladies room at the KH trying to control my nosebleeds. Hours! If it went on long enough, I'd get called to talk to the elders who would give me the usual harassment. This is why I got seemingly more than my share of lectures--telling me to get the bleed stopped, pray harder, a plethora of stoooooopid granola hippie suggestions, I "better not put my mother through having to take me to the hospital", "Jehovah will bless you if you have a clean heart," etc. That is probably when I began to hate several ppl in my KH because they were so annoying and cold-hearted. #$%^ Prevent me from getting appropriate medical care and then blame me because my condition is out of control.

    Anyway........I just remembered something sad/hilarious that a dub said to me, based upon her vast study of Greek/Latin/etc. at the Awake University. It went something like this:

    "You know, hemophiliacs are like vampires. The root of the word 'heme' means 'blood' and 'phila' as we know from our studies means 'like'. So a hemophiliac is a person who likes blood. And they take blood transfusions, which is feeding on blood. Vampires like blood too, and they are demonized."

    A wonderful thing to tell a child--they like blood, are like a vampire, and are demonized. AS IF I was at fault for having this medical problem or for not controlling it. PLUS you have to wonder about parents who don't stick up for their children when they're being mistreated. I'm sorry but I feel this it is verbal abuse to tell a child they are possessed, are like "damaged goods" for getting a transfusion, etc.

    Just thought I'd share this little glimpse into the dark side of being a JW........for those who don't believe there is much of a dark side. I hate certain ppl for what they did as individuals, but I hate the org that brainwashed/enabled them to behave that way. "love amongst themselves"?????

    F Angharad posted Tue, 16 May 2006 17:33:00 GMT(5/16/2006)

    Post 4877 of 3479
    Joined 3/25/2000



    Unbelievable that people say things like that to kids !



    BTW: Is it Von Willibrands? I have that and it runs through my family, my sister's little girl has is very badly and gets severe nose bleeds, she has been in hospital many times because of it which is always a worry because of the blood issue.

    M Rabbit posted Tue, 16 May 2006 17:37:00 GMT(5/16/2006)

    Post 1515 of 2988
    Joined 1/8/2004
    You know, hemophiliacs are like vampires. The root of the word 'heme' means 'blood' and 'phila' as we know from our studies means 'like'. So a hemophiliac is a person who likes blood. And they take blood transfusions, which is feeding on blood. Vampires like blood too, and they are demonized."

    Yeah, well they ARE, ya' know. Damn leeches. My Bible tells me so.

    And people (like me) who have epilepsy are demonized (or maybe witches/warlocks), too. My Bible tells me so.

    And people who look at nekkid peoples. My Bible tells me so.

    And Smurfs...and...and...Harry Potter. My Bible tells me so.

    My Bible tells me so.

    Well, Jehovah told the GB & they told the WTB&TS and they told the DO's, CO's & PO's -- and they told us !

    Cwazy, Demonized, Nekkid Peoples lookin' Wabbit

    M greendawn posted Tue, 16 May 2006 17:45:00 GMT(5/16/2006)

    Post 6022 of 12085
    Joined 4/9/2004

    That's a great post a classic example of why the JWs are justifiably known as a people without heart and without compassion despite their smiles and sweet manners when they are out talking to people.

    There are many similar examples about god's loving organisation.

    jw posted Sat, 20 May 2006 19:53:00 GMT(5/20/2006)

    Post 246 of 303
    Joined 4/23/2006

    I would have recomended vitamina made from fish oil.

    And it works to stop internal bleeding.

    F nsrn posted Sun, 21 May 2006 02:18:00 GMT(5/21/2006)

    Post 57 of 290
    Joined 2/1/2006

    Excuse me, jw, but you would recommend fish oil???? That is exactly the kind of non-educated, non-medical advice that witnesses give. I am pretty certain you are not a hematologist, and you do not know what clotting factor this particular type of coagulopathy involves. This poster is not asking for pseudo-medical advice, but is recalling a painful part of her childhood.

    Rebel8, I so wish you had not been told such things as child! I hope you are well managed now. I can remember some folks from our hall who were capable of saying things like that.

    F ESTEE posted Sun, 21 May 2006 02:33:00 GMT(5/21/2006)

    Post 1890 of 2368
    Joined 10/16/2002
    I'd get called to talk to the elders who would give me the usual harassment. This is why I got seemingly more than my share of lectures--telling me to get the bleed stopped, pray harder, a plethora of stoooooopid granola hippie suggestions, I "better not put my mother through having to take me to the hospital", "Jehovah will bless you if you have a clean heart," etc. That is probably when I began to hate several ppl in my KH because they were so annoying and cold-hearted. #$%^ Prevent me from getting appropriate medical care and then blame me because my condition is out of control.


    ((((((((hugs, rebel))))))))

    I am so sorry to hear of your experience.((()))

    Here's another one. It happened to me:

    "Elders and members told me with such sincerity,

    “Anyone looking behind the plow is not well suited for the kingdom of God." ---Luke 9:61-63.

    They were certainly well-intentioned, quoting scriptures to encourage me. Apparently I was not supposed to be remembering those images of abuse as they came flooding in on me. These friends thought I was obsessed thinking about childhood issues. I was wasting my time when I could be out preaching the word and gaining converts.

    What was I thinking?" -- Quoted from manuscript Phoenix of Faith

    *** Keep writing about your experiences, rebel. It is a very healing journey.

    *hugs*

    ESTEE

    kgfreeperson posted Sun, 21 May 2006 02:35:00 GMT(5/21/2006)

    Post 767 of 757
    Joined 3/16/2003

    Perhaps jw's suggestion is what was meant by:

    "This is why I got seemingly more than my share of lectures--telling me to get the bleed stopped, pray harder, a plethora of stoooooopid granola hippie suggestions,"

    Scully posted Sun, 21 May 2006 03:13:00 GMT(5/21/2006)

    Post 9628 of 13520
    Joined 11/2/2001

    jw:

    I would have recomended vitamina made from fish oil.

    And it works to stop internal bleeding.

    Where did you get your medical degree? or medical licence? From a box of Cornflakes or Froot Loops?

    M AlmostAtheist posted Sun, 21 May 2006 03:35:00 GMT(5/21/2006)

    Post 3705 of 5307
    Joined 8/26/2004

    >>The root of the word 'heme' means 'blood' and 'phila' as we know from our studies means 'like'. So a hemophiliac is a person who likes blood. And they take blood transfusions, which is feeding on blood. Vampires like blood too, and they are demonized

    And of course those awful "diabetics", well, you know about them, I'm sure. "Dia" -- greek for "through" -- combined with "bet" -- to gamble, clearly a violation of Jehovah's commands against greed -- tell us that those with diabetes got that way "through betting". Filthy, stinkin' Vegas gamblers, the lot of 'em.

    Dave

    M Stephanus posted Sun, 21 May 2006 04:27:00 GMT(5/21/2006)

    Post 4443 of 4667
    Joined 4/19/2001
    I would have recomended vitamin a made from fish oil.

    Of course you would, JW. And you know why? Because you're a bloody idiot!!! That's why!

    Rebel, that just helps make me hate that sick organisation even more, were it possible! Accusing a sick child of vampirism, of all things!

    M Stephanus posted Sun, 21 May 2006 04:30:00 GMT(5/21/2006)

    Post 4444 of 4667
    Joined 4/19/2001
    Where did you get your medical degree? or medical licence? From a box of Cornflakes or Froot Loops?

    The latter, since JW obviously IS a Froot-Loop.

    M Stephanus posted Sun, 21 May 2006 08:46:00 GMT(5/21/2006)

    Post 4445 of 4667
    Joined 4/19/2001

    Besides, for the ending to mean "lover of", it has to be rendered "-phile", as in "paedophile" - you'd think Dubs, with all their defence of the latter, would know this!

    F rebel8 posted Sun, 21 May 2006 12:53:00 GMT(5/21/2006)

    Post 3736 of 10070
    Joined 1/13/2005

    Thanks to all for your kind responses! (Yes, my condition is much better controlled now, but of course I still have my moments...it is a gigantic relief to have real medical care.)

    And the jokes--hilarious! This forum always keeps me laughing. The other day I ate my lunch in my office instead of the break room because I couldn't stop laughing for half an hour.

    Sometimes JWD posters are accused of being bitter malcontents; maybe reading stories like this will make ppl realize how valid the anger is. Imagine those who were abused--much worse than anything I ever went through--what unimaginable horrors they experienced. Not being angry is often unhealthy in situations like that.

    jw, I hope you were kidding about the Vitamin A. (Even Vitamin K doesn't help because it doesn't replace what I'm missing.) It did make me laugh though--very remniscent of the strange advice I was given as a child. I was on alfalfa tablets for a while, then Vitamin E, which almost killed me because it makes bleeding worse. JWs gave me that junk and my mother thought we had outsmarted the doctors, what a laugh. I am significantly deficient in 2 blood fractions and no vitamin, herb, granola, acupressure, iridology, shaming, wishful thinking, or praying is going to change that.

    M BluesBrother posted Sun, 21 May 2006 13:23:00 GMT(5/21/2006)

    Post 2994 of 8632
    Joined 10/29/2001

    A terrible thing to say to a youngster and i would surely hope that her parents would put the offending party in their place. It is significant though

    ........I just remembered something sad/hilarious that a dub said to me, based upon her vast study of Greek/Latin/etc

    All organizations & churches have their share of crackpots, well meaning or otherwise. I highlighted the fact that she was a woman, not to offend any of the intelligent women on here, but to show that this was not official policy, and did not even come from a servant or elder. I guess we have to live with life's idiots, wherever we find them

    As for jw's suggestion? Many people have found relief from ailments and sickness from unorthodox treatments, some swear blind their lives have been saved. Should we immediately decry something because it does not come prescribed and in a packet?

    I do not know , or believe that it would work, but if someones recommends something, I at least am gracious enough to accept the personal recommendation and act on it or not as I see fit.

    F rebel8 posted Sun, 21 May 2006 14:09:00 GMT(5/21/2006)

    Post 3738 of 10070
    Joined 1/13/2005

    I can understand your point of view. Here are my thoughts.

    I realize this woman was a crackpot. However, my KH was comprised of mostly crackpots like this woman. The other thing to consider is that silence is an endorsement. She should have been corrected & made to apologize to me, but instead the reaction was that children should respect all adults no matter how inappropriately they behave.

    I was not a person to not listen to suggestions. To the contrary, I was searching for a solution. At a certain point, my research taught me what would help my condition and what wouldn't. I literally spent hours every day bleeding--in school, at home, walking to school, at the mall--in many places. I had physician's office visits several times per week and emergency room visits several times per month. I knew what caused my nosebleeds and the best way to stop them. By virtue of my experience, I was an expert on my condition & knew a lot more than a random person in a KH bathroom ever would. So did my parents.

    I realize ppl want to help and offer their unwanted/unsolicited advice....however, it is idiotic to believe you know more about how to treat a rare condition than the person who struggles with it for hours daily, and their entire medical team. There is a difference between saying, "My friend has nosebleeds & says such and such helps....", offering assistance and then leaving (appropriate) VS. insisting someone take your bizarre suggestions and criticizing your relationship with God if you don't (inappropriate).

    For example, there were a few ppl in my KH that insisted all I had to do to stop my nosebleeds was to tip my head back, and they actually took my head and forced it back if I declined. Far from appropriate or helpful! All that does is make the blood go down your throat--it does nothing at all to affect the bleed, and in fact made me sick to my stomach after hours of....well I'll leave it at that (gross). I thought I'd be executed by Jehovah for drinking blood. My mother was present in the KH. They had no business taking over decision-making for someone else's child! Yet the silence endorsed their actions.

    I find it highly arrogant that these ppl would think their selection of a random vitamin outsmarted medical science, the patient, and their family. My non-JW parent & a grandparent had the same condition I do, so it is not as if I had no adult direction in this matter either. That was well-known in the congregation. Today, I usually do the polite, "uh huh," and just go on about my business, but the JWs in my KH couldn't leave it at that. They insisted their suggestions be taken no matter how dangerous or stupid--and the "cures" were all supposed to be taken to replace medical care, not as an adjunct.

    Then there was the outrageous method of "diagnosing" me. There were a few women who would tell me every freaking time, "it's just your sinuses, take some cold medicine". Aaaargh! I wanted to say, "So you came to this conclusion while peeing in the toilet next to me for 90 seconds? You must be right; I'll just ignore the doctors I see every freaking week for this condition and listen to you." How many dozen times does a person have to tell me that before I'm allowed to get aggravated? (The cold medicine they wanted to give me would have made it worse BTW.)

    My whole impression of my KH's view of medical care is that physicians are idiots and liars, and all they need to do is to rely upon rumors, hocus-pocus, and guesswork to outsmart physicians. That is because they've been taught that for over a century: Brochure: Bizarre Medical Myths--Believe it or not! The reason I now jump on alternative medicine suggestions to cure my bleeding disorder is that they are intended to perpetuate the WTS myth that use of blood products is never necessary. I think it's important to debunk those suggestions to ensure the medical misrepresentations the WTS has perpetrated over the centuries does not go unnoticed.

    jw posted Mon, 22 May 2006 14:32:00 GMT(5/22/2006)

    Post 248 of 303
    Joined 4/23/2006

    Don't knock it till you have tried it.

    F rebel8 posted Mon, 22 May 2006 15:22:00 GMT(5/22/2006)

    Post 3745 of 10070
    Joined 1/13/2005

    I have taken a multivitamin for years that has Vitamin A in it--no effect. Plus I am not deficient in Vitamin A, a cause of bleeding in some people (but not the cause of mine).

    It's not as if I'm not open to the idea that there is some kind of easy treatment out there. I've tried a ton of other alternative treatments in my 37 year bleeding disorder career. Many harmed me while the rest had no effect. I'm a regular participant in scientific studies too.

    I wish it could be so easy as to take a vitamin or whatever, but unfortunately, most of my wishes don't come true.

    F sass_my_frass posted Mon, 22 May 2006 15:34:00 GMT(5/22/2006)

    Post 1059 of 3678
    Joined 4/1/2005

    Madness.

    I'm going to give blood next time Mr Frass goes. I'm not completely comfortable with the idea, but I figure that as I'd rather have blood than die, it's only fair that I donate it too.

    jw posted Thu, 25 May 2006 18:44:00 GMT(5/25/2006)

    Post 272 of 303
    Joined 4/23/2006

    proper vitamin A ( no Carrot stuff) dosage is 100,000 iu a day for 2 weeks then reduce it or stop all together if bleeding ceases.

    And it will have an immediate effect.

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